GOD IS GREAT!!!

WOW, IS TODAY A WONDERFUL DAY OR WHAT?!?!? Im sure many of you havent heard but California Stem Cell, Inc. and Families of Spinal Muscular Atrophy Announce Completion of Pre-IND Meeting with FDA for Stem Cell-Derived Therapy for the Treatment of Spinal Muscular Atrophy Type I!!!! This means we are just way closer to the cure and have one less hurdle to overcome!

I read the news this morning as I was doing my daily search on Stem Cell therapy updates. I cried as my heart raced and my feet trembled for this is the beginning of great news that my life has been waiting for! Bella was sleeping and I knew i couldnt bother her but I wanted to run in the room and yell "MAMA'S WAKE UP!!! WAKE UP!!! THE CURE IS EVEN CLOSER NOW!!!!" and hug her and kiss her!! This fight has NOT been easy and many people have been such dicks (for lack of a better word) but Brandon and I kept our prayers high and faith strong because we knew that threw Christ anything is possible!! Im not going to convince myself yet that my daughters cure is just a few more hectic months/years away because I dont want to let myself down but oh man is that hard to do when I read such wonderful and delightful news!

This isn't just any news, this is news about life! About saving thousands and thousands of babies, and toddlers, and adults who have to live everyday in a body that refuses to work hand in hand with their mind. Families like mine are rejoycing today, screaming at the top of their lungs "THANK YOU GOD FOR LISTENING AND DELIVERING!!" Tonight will be a night of celebration for all those directly and indirectly affected by SMA. This may not be the green light to begin stem cell therapy for SMA but you know what...its one darn step closer!!!

Bella is thriving like you wouldn't believe doing more and more impresive things as the days pass! She understands everything you say to her and she tries to mimic everything you do. Aside from everything Ive already ;listed on this blog that she has accomplished she now gives you her hand when you ask her for it. Its the most beautiful feeling when I ask my daughter to give me her hand so we can pray and she does. I dont get to feel that rush of emotion when you finally see your baby take its first step, or sit up unassisted, or even begin to crawl, but my experiences with her are soooooooooooo much better because my experiences are those that I was told we would NEVER have. So yes, a lift of her hand is a big deal. And yes, and good 90 degree turn of her head when she is sitting up assisted is a big deal. Bella is my big deal :)

Im so excited I can hardly contain myself, so I must stop blogging for today because all I really want to do is yell at the top of a mountain "THANK YOU THANK YOU THANK YOU!!!!!!!!!